Personal information in medical research (withdrawn)

Guidance for Medical Research Council (MRC) grant holders using individual patient data in their research without consent from the individual patients.



Personal information in medical research (PDF)

, 303 KB

If you cannot open or read this document, you can ask for a different format.

Request a different format

Email, telling us:

  • the name of the document
  • what format you need
  • any assistive technology you use (such as type of screen reader).

Find out about our approach to the accessibility of our website.


This guidance sets out procedures that need to be followed by MRC-funded researchers where consent to use individual patient data will not be obtained from the individual patients. The guidance includes:

  • general and legal principles
  • consent scenarios
  • safeguarding confidentiality
  • safeguarding other interests of the individual
  • storage and re-use of data
  • information and consent forms.

This is the website for UKRI: our seven research councils, Research England and Innovate UK. Let us know if you have feedback or would like to help improve our online products and services.