Guidance

Using information about people in health research

This guidance summarises the key principles that should be followed when collecting and using information about people in the course of health research.

From:: MRC
Published:: 3 September 2020

Documents

Using information about people in health research (PDF)

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Details

This guidance applies to all Medical Research Council (MRC) employees and reflects best practice for MRC-funded researchers, for using and sharing health research data about people. It includes:

principles and summary of relevant law
identifying participants
collecting data and consent
using anonymisation and pseudonyms
data sharing and publishing
accessing data
keeping data safe
working without consent
archiving.