Using information about people in health research

This guidance summarises the key principles that should be followed when collecting and using information about people in the course of health research.



Using information about people in health research (PDF)

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This guidance applies to all Medical Research Council (MRC) employees and reflects best practice for MRC-funded researchers, for using and sharing health research data about people. It includes:

  • principles and summary of relevant law
  • identifying participants
  • collecting data and consent
  • using anonymisation and pseudonyms
  • data sharing and publishing
  • accessing data
  • keeping data safe
  • working without consent
  • archiving.

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